“Why are you just sitting here, staring at me like one of my cats?”
This is what a patient nearing the end of his life said to Rabbi Susan Landau Moss during one of her visits to him. In this guest post, Rabbi Moss shows both the gripping literary qualities a dialogue between a patient and a chaplain can build, as well as the poignant moments that can lift the interaction to a level out of the ordinary. She calls the patient Dom, and tells us, he had “been an in-demand house painter mere weeks before, and now he could not get to the bathroom without help. At only 57 he was confined to a hospital bed.” Excerpts from her moving story appear below:
I settled in for another visit with Dom, fully prepared for what had become an established routine. Dom was annoyed at best, aggravated at worst, driven to madness by his sudden lack of control over everything.
Why are you just sitting here, staring at me like one of my cats?”
I sat quietly while he surveyed his surroundings and dictated what my housekeeping tasks would be. I needed to earn his trust each time I visited, and I did so by calmly consolidating cups of ginger ale, refilling ice pitchers, and rearranging his clunky furniture just so. I did it humbly, knowing I, too, would be desperate for someone patient and obedient to help me organize my life if I were stuck in a bed. Once his basic needs were met, Dom’s prickly exterior softened. He would turn to me and ask, “How are you today?” Our real conversation could begin.
Shortly after we first met Dom helped me get to know him by explaining to me: his spirit animal was the wolf, because he felt alone in the world, yet he also craved a sense of closeness and belonging. He was estranged from his father, not even sure where the man was living, and disconnected from everyone else who might have once been close to him. Yet later in life, he had finally found the bond he’d yearned for in his friend, Bill, and Bill’s family. And whether he used those words or not, it was his dying wish to commit his gratitude to writing so he could know that Bill understood.
Dom had determined that he needed to write a letter to Bill, his best friend (his only friend). He was also certain he was incapable of writing something good enough. “How can you capture in writing what is true in blood?” he lamented. I felt my eyebrows knit together, matching his anguish. Who knew this ornery wolf was so poetic in his yearning?
We explored the letter-writing task from every angle. I have done this dance with patients before. The temptation to neatly capture heartfelt sentiment in a tidy package to be presented with sincerity on one’s dying breath…it is compelling as to be a nearly impossible feat. How many times have I spoken to patients who want nothing more than to write such confessions, love notes, legacies, only to end up paralyzed by a new form of terminal writer’s block.
I checked in with Dom the next day to find that he had agonized over his writing all night. He had produced a single line. Actually, he had produced two equally imperfect potential single lines, having gotten stuck on the salutation. “Should I say, ‘to Bill, my brother and friend, or ‘Dear Bill, the one true friend I ever had’?” It was even worse than I had anticipated.
I had wanted to empower Dom to produce something all on his own. After all, the idea had been entirely his. I felt conflicted… But as soon as I offered to help him, Dom’s words began to flow. It was halting at first. I took dictation, assisted with word selection. I offered reassurance after reassurance that his sincerity and gratitude radiated through each painstakingly wrought turn of phrase…
Finally, after a couple days, the letter was ready. But composing it had been only the first step. Dom explained that it needed to be read out loud so Bill could hear it in his voice. Otherwise, he feared, it would be too impersonal. The problem was that Dom knew he could not read the letter without crying, and this simply could not happen in front of Bill. Thus, I received my next assignment: to read Dom’s letter out loud to his friend without Dom present.
The experience brought me back to middle school, the task of passing notes between two classmates who blushed at the thought of confronting their crushes face to face. In a charting room reserved just for us, I sat facing Bill. I read him his friend’s letter while Bill fidgeted and averted his eyes. He nodded stiffly, every bit the former police officer Dom described him as. “It’s nothing he hasn’t already told me,” he mumbled when I finished. But when I offered the printout I had read from, he carefully folded it and held on tight.
I said goodbye to Bill and headed back to Dom’s room. The wolf looked up with wide teary eyes. “What did he say? Did he like it?” Neither grown man could confess their feelings out loud. But I saw the truth when I left them to watch their last football game together. Two buddies, who might as well have been wrestling around the den under the mother wolf’s approving gaze.
Dom died a lone wolf. At the end he was alone in a hospital room, incensed because paint thinners were not allowed in the hospital (even so a dying man could work on his beloved model car), and from knowing he would never be able to paint again anyway. When he cursed at me about the paint thinners—the latest of many insults– his words retained their sharpness, but I had to sit closer to him to hear. Dom’s body seemed almost pinned to the bed as it became harder for him to sit up and gesticulate. He fell asleep easily, which made me feel sad. And it also felt like mercy.
Dom used to start our visits with brusque barbs and snarky remarks. He was also the man who, on multiple occasions, shocked us both by tearfully asking for a “healing hug from someone who really understands.” Despite his wounds, he was capable of deep friendship forged late in life. He died alone, but he died knowing that his friend understood what a gift that connection was. And he gave me the gift of being –ever so briefly – welcomed into their pack.
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Rabbi Susan Landau Moss, Board Certified Chaplain, is the palliative care chaplain at Yale New Haven Hospital’s Saint Raphael Campus. Prior to serving in this role she was the first palliative care chaplain at Bridgeport Hospital, in the same system, and integrally involved in establishing their outpatient palliative care program. In addition to palliative care, she developed an interest and specialty in the growing field of telechaplaincy, an essential tool during and after the pandemic. She was involved in organizing the first international telechaplaincy conference in 2022. Susan graduated from Brandeis University and was ordained by Hebrew Union College in New York. She lives in an adorable small town in Connecticut with her husband, “the other Rabbi Moss,” their son, and cat.